Praise God, Jeremy was able to be seen in clinic today! He got his platelet transfusion and gcsf through his central line.  Thank you all for your prayers.  God is good, regardless of the trials we face.

Praise God, Jeremy has also been fever free and eating.  He continues to run and play and laugh and sing.  Jeremy’s really developed his language skills and he’s been making it pretty evident here at home.  This morning he observed me as I was running to grab a tissue.  When I got it, he told me, “Daddy, have to be careful.  If you run too fast, you fall.  You fall on your back and your butt butt, then you get bruise on your back and your butt butt.”  During our clinic appointment today, which happened to be during his nap time, I tried to get him to sleep, but before he did, he wanted to tuck his pants into his socks.  I quietly obliged, but was rolling with laughter on the inside.  I have no idea where he even got that one.

Our spare time’s been spent mostly trying to keep the place clean and trying to build better habits in order to do so.  There’s a lot to do, but we’ve got our hands full, so the best we can do is chip away at it a little at a time.  Our families are helping, which is a blessing.  Alice’s mom has been making meals every day and my parents have offered to help run errands like grocery and supply shopping.

We continue to daily, hourly, lift Jeremy’s recovery to the Lord.  Each day brings some new challenges, but they are full of God’s love, grace, and mercy.

Praise God:

  • that He is ever-present
  • Jeremy was able to be seen in clinic
  • Jeremy is fever free
  • Jeremy is eating

Please pray:

  • that God would continue to use this situation for His glory
  • that we would be obedient to God’s plans for this situation
  • that we would continue to cast our worries and fears on the Lord, that we would fix our eyes on Him
  • that we would continue to be reminded of God’s greatness and provision, that we would wait on Him, and that we would not allow fear to creep in
  • that we would rejoice in the moments that God gives us
  • that God would provide full and complete healing and total health for Jeremy, that the bone marrow transplant would be Jeremy’s final cure
  • that Jeremy would not develop any late effects from the chemotherapy and drugs used to treat him, especially any second cancers
  • that Jeremy would not have any brain, liver, lung, kidney, pancreatic, heart, or any other type of organ damage as a result of the chemo and antibiotics
  • that God would protect Jeremy from any scrapes or bumps as his new marrow is not producing enough platelets yet to avoid transfusions
  • that Jeremy would not experience any spontaneous bleeding from his nose, central line, or anywhere else on his body
  • that the CMV would be eliminated from his system, that the CMV would not infect Jeremy’s lungs or cause any issues with his eyes
  • that Jeremy would not encounter infections for fevers while he is home
  • for Jeremy’s mental and emotional healing from the traumas he’s endured for the last 6 months and whatever he will have to face in the future
  • that Alice and I would not get sick in order to care for our family
  • that Matty would nurse easily and sleep well
  • that Jeremy would maintain the desire to pray
  • that God would give us the proper balance in caring for Jeremy and Matty

Please pray for the bone marrow transplant:

  • that the donor cells would engraft, that Jeremy’s body would not reject the transplant
  • that Jeremy would not encounter any graft vs. host disease, acute or chronic, especially anything severe or fatal
  • that Jeremy would experience the maximum graft vs. leukemia effect, that cells produced by the new marrow would attack any cancerous cells
  • that God would protect Jeremy’s skin, kidneys, liver, stomach, and intestines from both the donor cells and the medications used to treat and prevent gvhd
  • that the mismatched blood type would not cause any issues for Jeremy

Please pray for our family and neighbors:

  • for our neighbors in the bmt and oncology unit who are also enduring trials of their own, that they would find their comfort in Christ
  • for our parents and families – that they would have rest and place their trust in Jesus and receive His comfort
  • that we would be witnesses of God’s love and grace to our neighbors and the medical staff