Praise God for Jeremy’s 100 days post transplant! Praise God for how He has sustained Jeremy through all these months of treatment.  There have been (and will be) many peaks and valleys, but through it all God has shown us His goodness and faithfulness.

To celebrate Jeremy’s 100th day, we all took a short car ride to the nearest Lego store and picked him up a small something – he’s been asking about a Yoda mini figure for some reason, which is odd because he’s really only seen a 30 second Star Wars scene with Yoda in it.  He enjoyed the car ride, looking out the window, seeing planes in the air, making observations on the size and colors of cars whizzing by.  Since he’s in isolation, he, Alice, and Matty stayed in the car, while I went in to pick up his toy.  While waiting, he ate his snack, had some school time, and played some iPad (iPad time has been greatly reduced since we left the hospital, so it was a treat for him).  Even though he didn’t actually get to go into the store, he was pretty happy to receive his gift.  When we got home, we had a “picnic,” which was basically eating out in the living room.  He got to eat his lunch and play with his new toy.  After his nap in the afternoon, he told Alice and myself that “Today was a really fun day!”

The last few days have been nice.  Just being at home is nice.  Seeing Jeremy run around and laugh and play, seeing him sing to Matty to calm him down – all of it is a reminder of God’s presence and provision through it all.  Praise God for sustaining Jeremy through every round of chemo, every bout of mucousitis, every infection, every fever.  Praise God for providing Jeremy his bone marrow donor, protecting Jeremy’s vital organs through harsh chemotherapy treatments.  Really, praise God for everything!

There isn’t much more to update.  Our days are mostly quiet, which we enjoy.  We are a bit anxious about his platelets, though.  Labs will be drawn on Monday, during Jeremy’s monthly clinical visit with doctors.  Please pray that God would bring Jeremy’s platelet counts, every cell count (hemoglobin, white blood cell, ANC) back up and that He would restore Jeremy to good and perfect health.

The Lord is trustworthy in all he promises
and faithful in all he does.
The Lord upholds all who fall
and lifts up all who are bowed down.
The eyes of all look to you,
and you give them their food at the proper time.
You open your hand
and satisfy the desires of every living thing. (Psalm 145:14-16)

It’s been a while since any pictures have been posted.  Here are a some in no particular order, but pretty recent.


Thank you all for continuing to journey and pray with us.

Praise God:

  • for His goodness and faithfulness

Please pray:

  • that God would continue to use this situation for His glory
  • that we would be obedient to God’s plans for this situation
  • that we would continue to cast our worries and fears on the Lord, that we would fix our eyes on Him
  • that we would continue to be reminded of God’s greatness and provision, that we would wait on Him, and that we would not allow fear to creep in
  • that we would rejoice in the moments that God gives us
  • against relapse, that God would provide full and complete healing and total health for Jeremy, that the bone marrow transplant would be Jeremy’s final cure
  • that Jeremy would not develop any late effects from the chemotherapy and drugs used to treat him, especially any second cancers
  • that Jeremy would not have any brain, liver, lung, kidney, pancreatic, heart, or any other type of organ damage as a result of the chemo and antibiotics
  • that Jeremy would not encounter any form of GVHD, especially anything severe or fatal
  • that Jeremy would not experience any spontaneous bleeding from his nose, central line, or anywhere else on his body
  • that the CMV would not reactivate
  • that Jeremy would not encounter infections for fevers while he is home
  • that Jeremy’s counts would continue trending up more, especially his ANC, so that he will not need any more GCSF injections
  • for the slight skin issues we are seeing, that it would fade quickly and not lead to anything serious
  • for diligence in drawing blood from Jeremy’s central line – that they would be clean, easy, and complication free
  • for Jeremy’s mental and emotional healing from the traumas he’s endured during his treatment and whatever he will have to face in the future
  • that Alice and I would not get sick in order to care for our family
  • that Matty would nurse easily and sleep well
  • that Jeremy would maintain the desire to pray
  • that God would give us the proper balance in caring for Jeremy and Matty
  • for our families, that they would find their hope, peace, and comfort in Christ
  • that we would be witnesses of God’s love and grace